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COMING EVENTS

LUPUS FOUNDATION OF ONTARIO

Announcing a new study for patients with childhood onset SLE

Researchers at the Hospital for Sick Children, Toronto (SickKids) are interested in studying the outcomes of patients with childhood-onset SLE.  Little is known about the long-term disease course of patients who have had SLE since childhood.  With this study, we aim to study the disease course and organ damage caused by SLE over time.  If you were diagnosed with SLE before the age of l8 years and previously were treated at SickKids, we would love to have you contact us for this study.

There are 2 parts to this study:

  • A Questionnaire regarding your current medical status (l5 to 20 minutes)
  • Consent for accessing your medical charts at the doctors’ offices

You may take part in both or just Part l.

Please contact us today:

  • By email at lily.lim@sickkids.ca   (Dr. Lily Lim, Lupus Fellow)
  • By telephone at 416-813-7654 (Extension 2995)
  • Tell us how to contact you by telephone/email/mailing address

Your participation will help us understand the course of the disease in SLE patients and how to best manage lupus in patients like you.   Thank you!